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Hi my name is Tory. I go to Sandwich West Public school and I am 9 years old. I am here to talk about my feelings about Muscular Dystrophy. The thing that I hate about Muscular Dystrophy is that when my friends are playing games like soccer and racing each other I dont want to use up my energy and it makes me very unhappy to not play with them. I also will never know what it feels like to run fast. Sometimes my friends help me out and play games that I can play that dont waste my energy. There is one thing that I like and that is that I get to have a golf tournament every year. I get to tell jokes and play golf. The best thing about my golf tournament is that I get to raise money to help find a cure for my disease. My life is hard because I cant go on trampolines or jumping castles when I see kids on them they always look like they are having so much fun. I have a great friend named Kayden, he has a trampoline and when I come over to play with him he always gets off the trampoline to play with me. He is one of the kids that really understands my disease. On Halloween there were many houses with stairs so Kayden would go up to the houses and bring me candy. He is one of my best friends. Every spring we have a walk to raise money for Muscular Dystrophy. We walk 33 km through Spring Banks park in London. It is always a great but tiring day. Poppas hot tub sure feels great after the long day. I go to London every Tuesday with my mom and poppa to try a new drug. We are hoping that it slows down my disease by giving me a form of Muscular Dystrophy called Beckers that will help my muscles. The shots hurt and the blood work is not fun but it is definitely worth it. |
HERE ARE A FEW OF MY FAVORITE THINGS.... I LOVE STAR WARS, SUPERMAN, X-BOX AND INDIANA
JONES AND I LIKE TO PLAY WITH MY STAR WARS LEGO SETS.
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Brain POP animation about Duchenne Muscular Dystrophy |
FOR ADDITIONAL INFO CONTACT: KELLY AND FRANK PROVENZANO: 972-3075 FRANK AND LYNN KUMMER: 969-4643 CHRIS AND LAURIE GIRARD: 791-8695 or e-mail at torystourney@gmail.com |
This page was last updated on Sunday, April 17, 2011 |