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Hi my name is Tory. I am in grade 6 and I go to Sandwich West Public school. I am 11 years old (almost 12). Having Muscular Dystrophy is hard but I try not to let it stop me from doing the things that I like to do. I love trying new things. There is one thing that I like and that is that I get to have a golf tournament every year. I get to tell jokes and play golf. The best thing about my golf tournament is that I get to raise money to help find a cure for my disease. I made a new year’s resolution a few years ago (after I figured out what a resolution was) to take advantage of every opportunity given to me. I call it “No Regrets”. What this means to me is that whenever I get the chance to try something new I go for it, I don’t back out. You never know when you will be given the chance again. Since that time I have snorkelled, been tubing at my Uncle’s cottage, drove a jet ski in Mexico, learned how to shoot a rifle and a bow and arrow! I interacted with the dolphins in Cuba. I have repelled down a 40 ft wall and went on a zip line at cub camp. I also learned how to canoe. I rode a very big roller coaster in California that made me a little nervous. I think I will stick with this resolution forever. I have many great friends from my neighbourhood and class. They understand my disease really well and they help me any way that they can. My friends make living with Muscular Dystrophy a whole lot easier and they make life a lot more fun. Every spring we have a walk to raise money for Muscular Dystrophy. We walk 33 km through Spring Banks park in London. It is always a great but tiring day. I go to London every Tuesday with my mom and poppa to try a new drug. We are hoping that it slows down my disease by giving me a form of Muscular Dystrophy called Beckers that will help my muscles. The shots hurt and the blood work is not fun but it is definitely worth it. I take a karate class to help me learn to relax when I get the shots. It has helped a whole lot. It doesn’t hurt as much.

HERE ARE A FEW OF MY FAVORITE THINGS....

I LOVE STAR WARS, X-BOX, X-BOX 360 AND THE LORD OF THE RINGS. I ALSO LIKE TO BUILD MY STAR WARS LEGO SETS.
I LIKE TO BAKE CHOCOLATE CHIP COOKIES TOO !!
I'VE BEEN TO SO MANY PLACES...DISNEY WORLD AND LAND, PUNTA CANA, CUBA, ARIZONA, MEXICO AND A CRUISE.

TV SHOW: SPONGEBOB SQUAREPANTS (my dad gets annoyed when I watch it to much)
SPORTS: DETROIT TIGERS, DETROIT RED WINGS, TORONTO MAPLE LEAFS AND PITTSBURG STEELERS
DISNEY RIDE: THUNDER MOUNTAIN (It's the “WILDEST RIDE IN THE WILDERNES”)
RESTAURANT: THE KEG
FOOD: CRAB LEGS, NONNA'S PASTA AND APPLE PIE (did I mention Nonna’s pasta)
PLANET: URANUS :) (The Science Centre in Toronto is really cool)
COLOUR: BLUE
SONG: PAYPHONE BY MAROON 5

MY NAME IS TORY EUGENE PROVENZANO...'TOR' FOR SHORT. MY BACKWARDS NAME IS 'YORT' AND MY NICKNAME IS 'TORY MAN'. I'M 11 YEARS OLD AND I'M IN GRADE 6 AT MY SCHOOL. I HAVE ALOT OF GOOD FRIENDS AT MY SCHOOL. I BELONG TO SCOUTS CANADA AND ON SATURDAYS I GO HORSEBACK RIDING AND TAKE SWIMMING LESSONS. MY HORSE'S NAME IS CHARLIE.

This is a great video that might help you understand a little about my disease.

Thank You, Tory

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Brain POP animation about Duchenne Muscular Dystrophy